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Studies about participating in self-advocacy opportunities show significant, positive impacts on the well-being of people with I\/DD, including, but not limited to:
\u00a0 \u00a0 \u00a0\u2022 Improved social networks
\u00a0 \u00a0 \u00a0\u2022 More engagement in meaningful activities
\u00a0 \u00a0 \u00a0\u2022 Improved self-esteem and confidence
\u00a0 \u00a0 \u00a0\u2022 Better mental physical and mental health
\u00a0 \u00a0 \u00a0\u2022 Acquisition of new skills
\u00a0 \u00a0 \u00a0\u2022 Improved resilience<\/p>\n
The Home and Community Based Services (HCBS) Settings Rule requires agencies to actively inform and support people they serve to exercise their basic human rights. Agencies lacking effective models and tools for rights promotion are at risk of defaulting to compliance-driven approaches that merely inform people of their rights in member service manuals provided at intake or at annual meetings. HCBS organizations can \u2013 and should \u2013 do more to improve people\u2019s quality of life through regular engagement in a variety of self-advocacy
opportunities.<\/p>\n
Living Well created tools and tested approaches agencies can use to support people to learn about their rights, gain self-advocacy skills, and take on leadership roles. The approaches Living Well agencies used had a bigger impact when people with lived experience were involved in co-facilitating and leading opportunities. The most effective approaches focused on two key areas:
1) Offering a variety of opportunities for people to learn, self-reflect and plan and 2) Supporting people who receive services to co-design and lead opportunities. By providing a range of opportunities, agencies observed people, some of whom they had supported for years, grow in ways they had not considered before.<\/p>\n
\nPeople with disabilities are 27 times more likely to exercise their rights
when organizations have supports in place to assess, educate, and support them to exercise their rights. This statistic is significant. Rights promotion should be
a top priority for HCBS organizations.<\/p>\n<\/blockquote>\n[\/et_pb_toggle][et_pb_toggle title=”How Agencies Can Foster Self-Advocate Leadership and Engagement” _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n
Agencies can engage people in one-to-one and small group opportunities that help them discover more about themselves, make connections with others, learn how to stay safe, and speak up for themselves. New assessment and planning tools will provide new ways for staff to have meaningful conversations
and teach information that improves people\u2019s health, safety and overall well-being. Agencies should use tools that are designed in plain language and reviewed by self-advocates.<\/p>\nConduct better assessments to learn more about the people and what is important to them.<\/span><\/strong><\/p>\n
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- Use the Life Skills Self-Assessments, Quality of Life Questionnaire, and\/or Personal Outcome Measures Interviews to engage people in deeper, more meaningful conversations about their life experiences, preferences, and
support needs.<\/li>\n- Use the Healthy, Safe and Connected Toolkit to identify health support needs, raise awareness about abuse and how to report it, and encourage people to get more involved in their communities.<\/li>\n<\/ul>\n
Provide training and education on self-advocacy and human rights.<\/span><\/strong><\/p>\n
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- Facilitate Safe and Free meetings with self-advocate leaders to introduce Self-Advocacy concepts and learn what people are interested in knowing more about.<\/li>\n
- Host peer group meetings on topics of interest such as voting, healthy relationships, employment, and safety.<\/li>\n
- Use the Let\u2019s Talk About Rights Guides and videos to educate and elevate the importance of rights, identify ways people\u2019s rights have been limited, and stir up conversations about personal advocacy.<\/li>\n
- Train staff to understand the content of Safe and Free and Let\u2019s Talk About Rights in order to use these materials and weave the topics into discussions while providing one-to-one or small group services.<\/li>\n
- Use Open Future Learning training modules to improve your staff\u2019s understanding of person-centered thinking and
planning.<\/li>\n<\/ul>\nCreate opportunities for empowerment and leadership.<\/span><\/strong><\/p>\n
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- Identify and support self-advocate leaders to learn the content of Safe and Free and Let\u2019s Talk About Rights to engage their peers in conversations about these important topics.<\/li>\n
- Support self-advocates to reflect on and find power in their self-advocacy journey through writing\/recording and sharing their personal stories.<\/li>\n
- Support a People First Chapter for self-advocates to make connections and take action in their communities.<\/li>\n
- Establish an Advisory Committee comprised of people who receive services and their family members to co-design and improve service delivery.<\/li>\n
- Find opportunities for people to mentor one another.<\/li>\n<\/ul>\n
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Safe and Free Meeting Guides<\/a><\/span> –<\/span><\/strong> Safe and Free meetings are designed to help youth and adults with I\/DD learn about important topics and skills for self-advocacy, safety and independent living. This meeting series is co-facilitated by a self-advocate leader and an agency staff. Meetings are typically 1 hour to 1.5 hours long. There are 12 meetings in the series. The topics include: Knowing
Yourself, Knowing Your Community, Communication, Problem Solving, Rights, Voting, Safety at Home, Safety in the Community, Abuse Awareness and Relationships.<\/p>\nLet\u2019s Talk About Rights Guides and Videos<\/a> <\/span>\u2013<\/span><\/strong> These guides and videos help people understand human rights. There are three guides available: one for self-advocates, one for agency staff and one for family members and guardians. Each guide was developed in workbook format to facilitate reflection and
planning.<\/p>\nHealthy Safe and Connected Toolkit<\/a><\/span> – <\/span><\/strong>The toolkit features three sections: Stay Healthy, Stay Safe, and Stay Connected. These sections feature plain language resources and worksheets for you to fill out and talk about with your supporters.
The fillable version of the toolkit can be downloaded in English, Spanish, or Hmong here. You can also fill out our resource order form to get physical copies mailed to you for FREE!<\/p>\nPersonal Outcome Measures Interviews<\/a><\/span> \u2013<\/span><\/strong> Developed by The Council on Quality and Leadership, The Personal Outcome Measures\u00ae (POM) is a person-centered discovery tool to explore the presence, importance, and achievement of
personally-defined outcomes, along with the supports that help people attain their individual goals and dreams.<\/p>\nTransCen Skills Assessment<\/a><\/span> –<\/span><\/strong> TransCen, Inc.\u2019s Life Skills Assessment is a simple, one-page survey that measures an individual\u2019s ability to function safely and effectively in our world. The tool uses a 5-point rating scale to evaluate an
individual\u2019s level of independence and support needs across a number of life domains (i.e., home, community, social competencies).<\/p>\nQuality of Life Questionnaire<\/span><\/a><\/span> \u2013 <\/span><\/strong>The World Health Organization Quality of Life Questionnaire provides a format to assess people\u2019s experiences and satisfaction with their physical health, psychological well-being, social relationships and living
environments.<\/p>\nPeople First Chapters<\/a><\/span>– <\/span><\/strong>People First Wisconsin is a statewide self-advocacy organization for people with disabilities. By joining together in groups, individuals with disabilities learn to speak up for themselves, share ideas, friendships and
information. Agencies can provide support to a group of self-advocates to start\/maintain a local People First Chapter.<\/p>\n